Tuesday, May 27, 2008

Memorial Day




























Evan's surgery (removing the port-a-cath) went really well, it was a piece of cake compared to the biopsy! He had a blast in the fountains at Market Street. He started physical therapy today, to help with the neuropathy in his legs, and we think we will see big improvements now.
Today is the one year anniversary of Evan's diagnosis...wow, we've come a long way in a year! :)

Thursday, May 22, 2008

Evan's port-a-cath removal surgery is scheduled for tomorrow morning at 8am! Playing with his cousin Grace is a perfect way to pass the time...sooo serious when he runs. :)
Evan Carter and Gracie B
Spring 08



Saturday, May 17, 2008

Evan's newest obession is this car book - he could have us read it for hours! His spasms are better now, not as intense. :)

Thursday, May 15, 2008

Wednesday, May 14, 2008

Update

My how things can change in 24 hours - we are still cancer free but there's been a bump in the road. We just got back from the TCH emergency room, Evan was in excruciating pain and was not able to urinate since 9pm last night. We are not exactly sure why he can't pee, possibly some of the remaining tumor "flapped" over the bladder neck. They took several biopsies and I guess his bladder is having a hard time healing. They put another foley catheter in his bladder and gave him iv morphine which has helped considerably and allowing him to rest comfortably. Things were going smoothly and besides some bladder spasms he was urinating just fine on his own - and now this. UGH

We are keeping the foley in for one week and then we will reevaluate the situation. Keep the prayers coming please, nothings worse than seeing Evan in pain and not being able to help him.




Tuesday, May 13, 2008

Results Are In...

And the news is GOOD!! The biopsy results showed mature rhabdo cells that are no longer dividing with no malignancy. So we are officially off treatment. :) We hope to have the surgery for the port-a-cath removal scheduled for as soon as possible. After that's done then we will be back to TCH every three months for scans and lab work. It's all very exciting and we are headed to dinner to celebrate!!

Saturday, May 10, 2008

waiting

Evan's had a rough couple of days since the biopsy, he's had some bladder spasms and pain - but amazingly he's still super happy. Thankfully, this afternoon he got his foley out. He was in pretty intense pain until his first pee after the removal of the foley. It's hard to keep a three year old from moving around but he's pretty good as long as I explain it to him and keep him occupied. It helps when our family comes by to read and play with him. Nana brought plenty of books and games and Auntie and Uncle have come by several times to play. We're so lucky to have them. So now, we wait for the spasms to subside and for the results of the biopsy. Hopefully by mid next week we'll know more. :)

Thursday, May 8, 2008

Quote of the Day

"i beg you...to have patience with everything unresolved in your heart and try to love the questions themselves as if they were locked rooms or books written in a very foreign language. don't search for the answers, which could not be given you now, because you would not be able to live them. and the point is, to live everything. live the questions now. perhaps then, someday far in the future, you will gradually, without even noticing it, live your way into the answer..."
(rainer maria rilke)