Wednesday, April 30, 2008


We have a lot to be thankful for- Evan's scans came back clean!! They have scheduled a biopsy of the remainder of the tumor for May 8th. It is expected that the pathology on what is left of the tumor (approximately 40%) will come back negative. I believe that it will, but would love extra prayers for a cancer-free result and that Evan tolerates the procedure well. :) If all goes as planned, we will have his port-a-cath removed shortly after we receive the results (maybe even the next day)!
It's all very exciting, and a little nerve wrecking. I'll keep everyone posted and thank you for all the prayers.

Wednesday, April 23, 2008

The Great Brain

Relay Fun

The Relay for Life was a good time for a good cause. As a team we raised over $3200.00 for the American Cancer Society, as we kept a body on the track from 7pm to 7am. Evan had a blast, he had so much energy - playing soccer at 11pm! He took a survivor lap - while most everyone walked it, Evan ran over half of it! Now that's a survivor! :)

Friday, April 18, 2008

Playing in the playroom at the Texas Children's Hospital on our final day. Navigating through the playroom with IV poles is no easy feat! :)

The Final Infusion

The final VAC infusion was certainly exciting - Evan helped out (as usual) with the flushes. Evan is my hero. :)

Monday, April 14, 2008

Final Day of Chemo

Well...this is it. I'm sitting in the hospital, while Evan naps, waiting on his final infusion of chemotherapy. It's hard to believe that we've been fighting this cancer with chemotherapy for 11 months already. In some respects it feels like we've doing doing this forever and yet really, it's just flown by.

Evan is amazing, he's tolerated this arduous treatment beautifully. Not only has he tolerated it, he's thriving, as he blossoms into an energetic and curious three year old. I can't even begin to tell you how proud I am of him for the amazing little person he's becoming. It's fun to watch and I'm honored to be a part of it. Physically he's doing really well, no more bladder spams (thank God) and can you believe he's POTTY TRAINED!? It really only took a week (if that) and then he was in big boy underwear. He has great control of his bladder, which considering the intense radiation, is damn near amazing. I'm so thankful every time Evan pees. 11 months ago Evan had a Foley catheter and we didn't know if his tumor would shrink enough to allow him to urinate on his own. Now my son wakes up with a dry diaper after nap and tells me "Mama..I have to pee....A LOT". I love it! He's still dealing with some neuropathy in his legs from the vincristine chemo, but we've been told that hopefully in time that will resolve. It may take up to a year so we are going to start him in physical therapy to help it along.

I met with his oncologist today and the latest plan of action is to do his final scans - PET, CT, MRI and a Bone Scan at the end of April. Then they will know exactly how much of the tumor remains. At that point the urologist will most likely perform another biopsy to ensure that it is just "rhabdomyo blast" and not "sarcoma". If all turns out well then most likely he won't need surgery. They said they feel comfortable, based on past cases, to leave the remainder of the tumor in an effort to keep his bladder in tact. Hopefully there won't be much there and whatever is there is no longer active. We will know more the first part of May, but I'm feeling optimistic. We'll wait until all the pathology comes back clear before having his port-a-cath removed from his chest - won't that be a happy day!!

So much information, I'll let you all know more as I know more! I'll be posting some pictures from today and tomorrow too. All the nurses and doctors are so excited that he's done with treatment and they even put a cool sign on his hospital room door that says "Congratulations Evan on completing Chemo!". It's very exciting and I pray that this really is the end of this phase of our journey.

Thursday, April 3, 2008

Relay for Life

The Relay for Life is coming soon - April 18, 2008

Show your support for Team Sevan (Sean and Evan) by visiting Evan's homepage to make a donation!

Relay For Life®, the American Cancer Society's signature event, is a fun-filled overnight experience designed to bring together those who have been touched by cancer. At Relay, people from within the community gather to celebrate survivors, remember those lost to cancer, and to fight back against this disease. Relay participants help raise money and awareness to support the American Cancer Society in its lifesaving mission to eliminate cancer as a major health issue. During Relay For Life ® events, teams of people gather at schools, fairgrounds, or parks and take turns walking or running laps. The events are held overnight to represent the fact that cancer never sleeps. Through the survivors' lap and the luminaria ceremony, we honor the people who have faced cancer first hand, and we remember those who have been lost to this disease.
But, Relay isn't about taking laps -- it's about coming together in the fight against cancer. It’s a time to remember those lost to this disease and celebrate those who have survived. It’s a place where people connect with others, share the cancer experience, and find comfort and solace. And it's an opportunity to build hope for a future where cancer no longer threatens the lives of the people we love.

Evan the Cook

Evan loves to cook..anything really - but pizza is a favorite. I've found that it helps him to eat (when his appetite is not the best) if he's helped to make whatever it is that we are having that day. It's working for us now, so I'm going to capitalize on this as long as I can! :)

Wednesday, April 2, 2008

Evan's 3rd Birthday Party

Evan's Birthday party was a big hit! His Nana, Papa, Aunties, Uncles, all his cousins and friends Sean and Michael all came to celebrate. He got a ton of cars and a super cool racetrack that he can crash his cars on. He told me he wishes that everyday was his birthday!